Today begins Congenital Heart Defect Awareness Week.
It’s been on my heart lately that I truly want to be a better advocate. My plate is quite full, but this is always something I want to do. It’s always something that will be important to us.
Congenital heart defects are the most common type of birth defect in the United States and the number one cause of birth defect-associated infant illness and death. I knew that off hand, but you can find it on the CDC website as well.
Unfortunately, one of our children fell victim to those statistics.
I actually don’t think the CDC has done a CHD study in quite a while, but I can only pray that the mortality rates are improving. I know surgeries have come a long way and I would love to know statistics as far as adults who had surgeries as children.
Something that I think is huge is Pulse Ox testing. Not all Congenital Heart Defects are found before birth. Thank God that my OB found Cohen’s, but not all doctor’s do. I’ll never forget the day I read Cora’s Story. I knew about pulse oximetry and what it was, but I didn’t know about it until Cora. I didn’t know it could save a babies life before they left the hospital. I didn’t know that not all hospitals perform the test.
Ask. Tell. Does your hospital do it? Does your friend’s hospital? It’s required by law in some states and some states it’s not. I believe at some point all will require it. It also never hurts to ask to be SURE before you leave the hospital.
I have had people email and say they learned about Pulse Ox off my blog and it saved their baby’s life or their friends. That. That is why I’m doing this.
This site has good info on Pulse Ox.
Here is the site set up for the awareness week. It has many great resources.
This is a great site that shows the polices and progress on tests and newborn screening in your state. The image below is from the site. On the site, you can click on each state for more details.
Our sweet angel, Cohen. You can read all about him here. The slideshows should be returning soon.
I’m not sure I’ve ever posted this picture. I think he looks sweet on his side.
After Cohen, God sent us two more angels, with healthy hearts, that we get to keep here with us 🙂
Please share and support! Thank you for reading!