We love hearts and love and Valentine’s and all that jazz, but it’s also the week that we found about Cohen’s broken heart. Seems so ironic now. February 7-14 is now considered Congenital Heart Defect Awareness Week, which I posted about last week. Since it’s on my mind, heart I am again hopefully making people aware 🙂
Four years ago, today, I blogged about our life-changing appointment. I attempted to read it a bit ago and had to stop. I’m not sure the last time that I read it, but it’s not an easy place to go back to.
We found out about Cohen’s heart on 2.11.10. I didn’t really know what Congenital Heart Defects were. I had no clue what to do; I had no clue what it was happening to our baby. It took more than a few days to step back and realize that it would always be an unknown and there was simply nothing I could do to change it, but only try to help him. God had a plan, and of course I was not a fan of that part of our life plan, but we got through it. We had faith that what He wanted to happen would happen.
So during Congenital Heart Defect Awareness Week, we experienced the second hardest day of our lives. The first being the obvious.
I shared last week what I want people to really be most aware, which is the pulse ox test.
Something else you should be aware of: A lot of babies born with Congenital Heart Defects end up needing heart transplants. I’m not sure exactly those statistics, but lately it seems more often times than not. That takes donors. Of course I know everyone has their own opinions on donating, but it saves lives. I think I’ve posted this before, but I love this story. A young girl died and her heart was donated to someone in need. This lady is meeting the person who has her daughter’s heart. I know these things happen all the time, but this one you can see. It makes you realize that this can happen multiple times a day.
Sometimes it still really feels like a dream. It’s hard to not imagine being where we are now, though. So, I try not to.
Knox and Sloane know about bebe Cohen and how he’s in Heaven. Of course, there is a lot they don’t comprehend quite yet.
You can read all of Cohen’s story here.
You can see videos of him opening his eyes here. 🙂