Thank you all SO much for the feedback yesterday. I knew a lot of people had Celiac Disease, but I’m realizing more and more do. People are also saying that even if you don’t have the disease, it’s pretty common to still have issues with it.
I had NO idea, on so many levels, things people mentioned. People have cut gluten and seen changes in fertility issues to mirgraines and the list goes on.
The symptoms I have been having, may not indicate Celiac Disease for you but apparently it did for me. A lot of you said you were having the same symptoms. I figure it wouldn’t hurt to ask your doctor. My doctor said in med school, her professors told her she would never see a case of Celiac. She worries most doctors aren’t even that educated on it if they were told the same.
I know this will be an on-going learning experience for me. I know I have a lot to learn.
Obviously this is something I’m going to be passionate about, but I promise it won’t take over my blog. I worry people think, oh geez, another “issue” she’s going to jabber about, ha! Of course I talk about the things I’m passionate about, but I try not to harp on them. Otherwise, you would be reading about congenital heart defects everyday.
Anyways, I had quite a few comments and emails so I thought I’d address some them overall, right now. I’ll also go back and do each comment and email sometime today or this evening. So if you asked something specific, check back.
A few people asked about Knox’s skin. We will have both babies tested for Celiac, but I’m not sure when just yet. I’ll ask at my follow-up in a few weeks. As far as food goes, the only gluten they had been getting were a few snacks. I’ve tried to start cutting those to no gluten. They have been consistently eating brown rice pasta, Van’s GF waffles and Udi’s bread since food was introduced. I will say, after cutting most of their gluten snacks this past week after I was tested, we can already tell a difference in how often they poop and the consistency of it. Sorry, maybe TMI for some, but just stating the facts.
Autoimmune disorders are more common with CD. Knox gets his rash after he has a virus. They hope it just may be his immune system developing since no tests are pointing towards anything else. I definitely think it could be CD related, but no way to know at this point, I don’t think.
A lot of people asked about my skin issue. From what my most current dermatologists believes, it’s autoimmune progesterone dermatitis. I was actually getting ready to do testing for it when I became pregnant with Cohen, so I haven’t haven’t gone through the actual process, but it’s almost all that’s left on the list. Luckily, I’ve not had major issues with it since my pregnancies. I’ve seen a lot of doctors in the past eighteen years for it. Basically, my skin hates my hormones. The first time I ever started my cycle, I got shingles. For the past eighteen years, I get a rash on my hands, elbows, knees and feet, mostly hands. I’ve blogged a pic or two before, but I can’t think in what post specifically.
I had a bit of feedback on Autism. My doctor did not state that she believes gluten causes Autism, but just that she has pulled kids off gluten and has seen a difference, as in completely different child. She also mentioned changing one baby off formula (most have gluten) and that baby becoming a completely different baby. It was at a point where it should have been making eye contacting, interacting, etc. and it wasn’t.
People talked about how the sensitivity gets worse once you start the GF diet. I didn’t think about that, and while that really stinks if it happens, I guess it does make sense. I know that in the past, when I’ve gone for a long stretch eating “good” or non-processed, and then I do, I always get a little sick to my stomach. The way it says, GF may be a bit more extreme after cutting.
Thank you all again for the feedback, sites, resources, etc. If you have anything else, please comment or email me!
and because I can’t get enough….
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