When I posted our weekend wrap-up, I mentioned attending a charity dinner & auction for our little friend that went to Heaven last summer. It was such a nice event. It was sad and it was sweet.
It’s SO hard to watch a family go through what this family has gone through. It’s weird to think we’ve walked some of the same steps…same hospital…same doctors…..and unfortunately, the pain of saying goodbye to a child.
I really was oblivious to congenital heart defects until Cohen was diagnosed. Brent had gone to school with Lauren’s aunt and we were put in contact with each other. Lauren was doing great and had overcome to much!
Their Lauren would have been four years old this past Sunday. Her mom, dad and brother are so strong. They have created this foundation in memory of her and it’s already doing such great things in such little time. I know their hearts are still hurting so bad, and probably always will.
There was a delicious dinner & treats, silent and live auction and a wine pull. I wanted some beautiful four feet tall bunny rabbits, a boy & girl, but someone outbid me in the last few minutes. They were part of the silent auction. A trip to the south of France and one to wine country were part of the live auction, which was very nice!
People have really stepped in to help support this cause that is so dear to their heart.
There was an amazing heart doctor and a representative from a major heart foundation in Chicago that both spoke. They talked about how smaller organizations really end up being the life blood for making things happen. People who know someone, who feel the pain and loss and happiness and everything a family feels having a child with congenital heart defects.
There are many goals when it comes to Congenital Heart Defects. One of them is doing more surgeries in utero when a baby is diagnosed with CHD. This can help the CHD from becoming as bad and perhaps prevent surgeries outside the womb.
As I’ve blogged about several times before, the Save Babies Through Screen Foundation is a great resource to find out questions you should ask. I highly believe requesting the pulse ox test is a must.
Lauren’s dad said there truly is nothing like watching your child being wheeled through the doors of an operating room to have a surgery on their HEART. He is so right. Their heart is your heart. He also said there is nothing like the depths of pain you feel having to say goodbye to a child. Once again, so true. There is nothing like it. If other families can avoid this, how can we not help?
in loving memory of our beautiful daughter, the Lauren Elise Memorial
Foundation’s mission is to support awareness, research, diagnosis, and
treatment of Congenital Heart Defects (CHD) in children, and to provide
for the care and well being of children affected with CHD and their
Cohen would be two years old on Thursday. I’m still trying to wrap my head around this.
A few CHD facts from It’s My Heart:
- Congenital Heart Defects are the #1 birth defect worldwide
- Congenital Heart Defects are the #1 cause of birth defect related deaths worldwide
- About 1 out of every 100 babies are born each year with some type of
Congenital Heart Defect in the United States (approx. 40,000/year)
- Nearly twice as many children die from Congenital Heart Defects in
the United States each year as from all forms of childhood cancers
combined, yet funding for pediatric cancer research is five times higher
than funding for Congenital Heart Defects
- Each year worldwide 100,000 babies (under one year old) will not live to celebrate their first birthday
- Each year in the United States approximately 4,000 babies (under one year old) will not live to celebrate their first birthday
- The cost for inpatient surgery to repair Congenital Heart Defects exceeds $2.2 billion a year
- Of every dollar the government spends on medical funding only a
fraction of a penny is directed toward Congenital Heart Defect research
- The American Heart Association directs only $0.30 of every dollar
donated toward research. The remainder goes toward administration,
education and fundraising efforts. Of the $0.30 that goes toward
research only $0.01 goes toward pediatric cardiology for CHD
- Though research is ongoing, at least 35 defects have now been identified
- Although some babies will be diagnosed during gestation or at birth,
sometimes the diagnosis is not made until days, weeks, months, or even
years after. In some cases, CHD is not detected until adolescence or
- It is a proven fact that the earlier CHD is detected and treated, it
is more likely the affected child will survive and have less long term
These are the most current up to date statistics but medical
professionals and experts are confident the statistics are much higher
than what we have today. This is why we need your help. Click here to learn more about how you can be an advocate.