I don’t believe in saying one illness is worse than the other. They are are terrible. I think statistically speaking, this is a lot.
We found out with Cohen before he was born that he had congenital heart defects. God prepared us for what was coming, though we could never have been prepared for the outcome.
I’m not sure of the statistics off hand, but SO many babies are born and go home. It isn’t until they are home and crash that their heart defects are detected. Often times, it’s too late.
We are forever thankful to my OB detected something, via ultrasound, and sent us in for an echocardiogram. Of course, it was probably the second hardest day we’ve experienced, but at least we knew. We knew we had to fight.
I know some people live their lives not wanting to know until it’s time, but congenital heart defects can be detected.
It’s not required, but everyone can get an echocardiogram while pregnant. This can determine how the baby’s heart is functioning and if there are any signs of defects.
It’s not required (in most states,) but everyone can request/demand that their baby have a pulse oximetry test before leaving this hospital. This can determine if their are any heart defects, before the baby goes home.
I live in a state of I’d-rather-be-safe-than-sorry. I want to do all I can.
I’m a little bit convicted that I don’t have more about these tests, in plain sight on my blog. People need to know. They need to know there are tests.
I want to help.
This week I’m going to take the time to contact my legislator about the Pulse Oximetry Advocacy. Why shouldn’t we all want something to happen that can save lives? This is an easy test.
If you need to read something to let you know WHY you should have your baby checked, grab a Kleenex and read about Cora’s last night. It wasn’t until her fifth day on this earth that congenital heart defects took her life. No one knew anything was wrong with heart heart.
I take that back. God knew. He has also given Cora’s mom the strength to keep going and help teach others. She is doing an amazing job.
Ive never been in both situations, as far as knowing and not knowing. I knew. I knew Cohen had a broken heart. I know how bad my heart hurt for him and him having to leave us early. I can’t imagine not knowing…after what we’ve gone through.
We are wearing red this week, and most of the month, for Cohen and Cora..and Luke… and Ewan and so many other babies that once had broken hearts.