Cohen has been stable for about 48 hours:) We think he has gotten some good rest. His acidosis (lactic acid) levels have gone down about 6 points in over the past two days. That is a major answered prayer! They are hoping his calmness & resting will help him heal after his busy first week. The kidneys and liver have taken hard hits with the meds and procedures, so our specific prayer now is LIVER & KIDNEYS – PLEASE PLEASE START WORKING.
There are tons of levels and stats I could go over with you all. They all mean – we need the liver and kidneys to work. The heart cath put a lot of dye into Cohen’s body. The dye is hard on kidneys and liver. He has had two heart caths but on the second one, they had to put twice as much dye in.
They may start dialysis tomorrow. They are still making some decisions as to the best option for Cohen right now. He needs time. He needs time but time can also make things hard if they get worse. We had a few bad minutes this afternoon …mostly of worry. However, we are thankful Cohen has had a peaceful two days of rest. We just sit and stare at how sweet he is. I did snap a few with my rebel that I’ll post in a day or two.. I have a few iphone pics below. Yes, he is cute no matter how the picture was taken 🙂
Cohen’s stats are showing that his heart is probably working with the heart surgery he had on Wednesday. His BT Shunt and TAPRV repair are doing as they should, as far as we know. Now, we have some obstacles that hopefully Cohen can pull through. He is trying so hard and I know that’s all he can do.
He wants to be awake with us so bad. He opened his eyes this afternoon and yesterday morning. It’s not a terrible thing but he really shouldn’t be doing that. So, they increased his paralytic. His eyes are pretty.
I’ve snapped a few pics in the past few days I thought I would share with you guys. Sorry, they are all iphone..not always the greatest in darker light situations. I’ll try to keep my point and shoot close by. My rebel isn’t always quickest to whip out. Cohen has gotten some sweet and soft gifts I’ll be posting pics of those soon, too.
This is currently my favorite necklace….
Here was our sweet little guy yesterday……… (I’m still avoiding putting the open chest pics on blog)
They have his sweet pup, BT, resting by him and keeping some lines propped up nicely.
As I’ve mentioned, Brent is all on top of his notebook. It keeps us up-to-the minute on Cohen’s stats and when the doctors do rounds he has questions to ask and things to write down. It’s a great thing for us to keep up with everything.
We have been using this wagon to tote around some things to car/room/waiting room in attempt to get organized. It’s been in my sight for a day or two now and I keep thinking that hopefully Cohen can take a ride in it someday when he has no cords 🙂
After one of Cohen’s procedures, one of the nurses, April, put these sweet little booties on him 🙂 I thought they were adorable! They came with a matching hat.
I was sitting on the couch the other day and this is what I saw…..
Another sweet pic… Brent was making a list with Cohen of the professional baseball teams. We plan to take him to a game at each stadium.
The past few nights, on one of our best friends, Natalie, has come up to visit with us 🙂 Tonight, she brought us some yummy dinner…some of our fav in Dallas. This picture is from the week before Cohen was born but I forgot to post it. We went to dinner..
We are having a few visitors here and there. Natalie is the only one we’ve had really come sit for a bit. We’ve had a few sweet people swing by briefly and we have a few people requesting to bring us meals. So thoughtful. As far as Cohen’s visitors, they still don’t want many people back because of risk of infection with his open chest. His daddy and I are pretty protective as well. Hopefully, we will get there.
I continue to get emails asking how Brent and I are. We are still hanging in there too! We have the best reason in the world to be strong so most the time, we’re okay. I’m still sore and having some pain but definitely up walking more. I was HATING the wheelchair. Still using it for long distance hallways and such. Cohen probably has enough milk to share with a small army. So that is a pretty repetitive process that I’m so trying to stay on top of every 3 hours.
Once again, thank you all for the prayers and spreading the word about Cohen’s situation. God is in control and I know he is touching others lives through Cohen. I’ve certainly enjoyed reading the emails/messages hearing about it. I know a lot of you are blogging, tweeting, etc about Cohen and though I may not be commenting on it, I so appreciate it. If I come across one, I always so Brent as well. At some point, I’d like to have a link to all the posts on Cohen. I’d love for him to be able to read them all in the future. So, someday…watch for a post requesting your link if you have posted about our family 😉
So just a reminder, the kidneys and liver must start working. We need that tinkle to start!
I thought I’d share this text from Brent. As many of you know, I love ICEEs…and I love Super Target. I came up to the waiting room the other day when Brent was still back in the room and I got this text…