Hi guys! There was an issue with the prayer button I posted in my previous post so we have made an update!

We realized that the button wasn’t linking back to my blog. For all of you who grabbed the button prior to 9 am this morning (Thursday), you can either

1) go into the gadget and add http:// before the

2) simply copy the update code that is up now!

It just won’t work unless http:// BEFORE the my website!

So Sorry!!!!!!

If you find that it is wrong on someone else’s(which you can tell by clicking and it not taking you to my blog), you can let them know if you would like!

If you have any questions! PLEASE let me know :)


My amnio results are in previous post.

Also, I put a link on my sidebar that will take you to the few posts so far regarding what is going on with our sweet baby, Cohen.



  1. says

    I just caught up on Cohens diagnosis. Im so sorry to hear about all of the trials that your family is facing. Im glad that so far the amnio has come out clean, and I hope you continue to get great results. God is good and know that I am praying for your family and your sweet baby boy.

  2. says

    Hi Y'all,
    A friend sent me to your blog. My grandson, his name is Gus, was diagnosed with Tetralogy of Fallot (at 5 months in the womb. He had his heart surgery done by Dr. Mendeloff at Medical City of Dallas 3 weeks ago. He is still there but hopes to go home soon. My daughter's birthday is tomorrow she will be 26.
    We know the struggles you are facing. Praying for you big time. God is able and sufficient! My blog is, possibly you will find encouragement and hope from some of the posts. Especially the ones starting in the fall.
    Both my daughter and I will be praying for you.

  3. says

    Hi! My twin girls were in the NICU the same time Harper (Kelly's Corner) was. We ate some great cupcakes brought by someone too. Perhaps you brought them? I don't know if you already knew Kelly when you visited her at St. Francis or not. Anyway, small world. Praying for your baby's complete healing. – Jennifer (from Tulsa)

  4. says

    Came over from Kelly's blog….PRAYING and adding your button today!!!!!!!!! May God work a miracle in your son's life!! HE CAN DO IT!!!!!!!!!!!!!

  5. says

    I just came over from Kellys Korner. I read up on Cohen's story and when I read about the ultrasound visit, my heart broke. I know that feeling in that moment and it never goes away.

    My little guy, Owen, was born with HLHS (1/2 a heart) a rare, but common defect. He has had some open heart surgeries, many cardiac caths and now needs a new heart.

    It is such a BLESSED journey you are on. I will pray for Cohen and add you to the list of heart babies.

    I have heart AMAZING things about Texas Children's… you'll be in great hands!

  6. says

    I will be praying for you and for your little boy. I came through Kelly's Korner and I will be adding your button. I have a little boy named Cohen who turned a year old in January.Love the name and you don't hear it often. I will be praying for your family!

  7. says

    I just found your blog tonight and have spent the last two hours reading through all your posts! I love your blog and will remember to say a prayer for your baby boy too!

  8. says

    Just wanted to let you know that I am praying for you and your family. I work at Duke on the pediatric cardiac unit and deal with a lot of children with this congenital defect. There will be good days and there will be bad days, but remember that He knows the plan for sweet Cohen. Take care.

  9. says

    I came over via Kellys blog. I have three boys one who has a CHD..circumflex aorta and vascular ring. Both of these were repaired at TCH by Dr.Fraser. My son was 3 when he was diagnosed. Cohen is in my prayers, if I can help in any way please don't hesitate to email me. Heart Hugs!!

  10. says

    I found your blog from Kelly's Korner. I am a fellow heart mother myself- our son was born with Tetralogy of Fallot and has had two open heart surgeries. He's due for another one this summer. He's a fighter and has never given up, and we'll be praying for your precious Cohen. It is so hard not to ask "why??" at first, but I pray that in time you will know the reasons. It takes time to understand. Remember, God chose you to be heart parents for a reason- HE trusts you to care for one of his most special gifts!

    Sending heart hugs from Iowa!
    Jen, Craig & Andrew

  11. says

    Megan, my name is Stephanie Barrett. I got send your blog through a friend. My daughter Caydence is turning 2 on Sunday. She has hypoplastic left heart syndrome. In reading your blog, it sounds like the same 3 surgeries that caydence had- the norwood, the glenn, and the fontan.

    We live in Lewisville, tx, suburb of Dallas, and Caydence had her surgeries at Children's Dallas. I can't say enough good things about them. They were fantastic!

    We also interviewed several hospitals/surgeons, and I think that's a great idea to get a feel for whom works with you the best. The 1st place we interviewed didn't fit us. the were too cold. Then we went to Children's, and we just clicked with the staff. It made all the difference.

    Anyways, sorry to ramble on in your comments. I too was diagnosed at 23 weeks, so I can empathize with what you are going through. Please feel free to email me.

    Also, here is Caydences blog. You can go through some of the old stuff and see the journals we wrote as she was going through her procedures (and she still has 1 to go).

    God has a special calling for our heart babies, and us as mommies to the heart babies. They are so precious!

  12. says

    one more thing. This is a perfect analogy to how I felt, and still feel. hope it helps.

    Emily Perl Kingsley.

    c1987 by Emily Perl Kingsley. All rights reserved

    I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this……

    When you're going to have a baby, it's like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

    After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

    "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

    But there's been a change in the flight plan. They've landed in Holland and there you must stay.

    The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

    So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

    It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

    But everyone you know is busy coming and going from Italy… and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

    And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.

    But… if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.

  13. says

    Hi Meagan, I sent you an e-mail but wasn't sure if you would get it. We are also from OK and relocated to Dallas in September for our daughter's birth and care at Children's in Dallas. Amazing hospital and doctors! I will continue to pray for all of you and the road ahead — for healing and peace that passes all understanding!

  14. says

    Hi my name is Melanie, I saw your blog on kellys korner. I have 16 month old who among a long list of other things has a heart problem. We live in Houston and are currently in the picu at Texas childrens hospital. I saw you would be coming here to see a cardiologist. My son Witt just had his second open heart surgery. Although our babies heart issues are different we have been in the hospital for 10 months out of his 16 months he's been alive. I know every cardiologist and I'm very familiar with how anything works around here. If you have any questions I would be more then glad to try to answer them for you. I know how stressful it can be trying to understand and deal with everything that is going on. I will be praying for your little guys heart to be made perfect before he's even born. My sons blog-

  15. says

    I am also the mother of a Cohen! He is now almost 6 months old and very healthy, but he had a tiny bit of a rough start to his little life as well. I just wanted you to know that I am committing to pray for you and your sweet Cohen everytime that I sit down to nurse my sweet Cohen.

  16. says

    Hello….I have never left a comment on a blog, however something led me to do so here…..I wanted to tell you that Childrens Hospital Boston is number 1 in the whole country for Congenital Heart Defects…They have the best sucess rates and are absolutly AMAZING..They specialize in rare defects also..there website is,….you can check everything on their website…They do the surgeries daily! I have a son who is 2 1/2 and just had his fontan surgery in October 09'….He is doing well…these kids are sooo strong and resilent….He had the norwood surgeries also, and had them all at CHB (childrens hospital boston)I wish you the BEST…I know all to well how hard this is….I also know hearing success stories gives me so much hope and strength!

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